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  • Poor subby, not a single person is interested in even commenting.
  • Lesson 1 on how to survive cancer:

    Don't believe what you read on the internet. See an expert. Don't be wooed by commercials and people who use scare language. Run far, far away from people who use words like "natural", "homeopathic", and "they don't want you to know this"

    Never, ever, ever, eskew science-based treatment for something you see on a website or read in a book.

    Don't waste your money on things like stem cell quackery.
  • roblarky: Poor subby, not a single person is interested in even commenting.


    Reckon people are still trying to navigate through that tl;dr madness...
  • I stopped at the part about the goodbye letter to the breasts. Thats enough o' the crazy right there
  • Steve Jobs had the net worth of entire industrialized nations. You aren't going to make it.
  • cleveralthere: I stopped at the part about the goodbye letter to the breasts. Thats enough o' the crazy right there


    I'm willing to give her pretty wide latitude if she's getting a major, physically definable body part cut out. If she's doing that to her appendix or tonsils, something that no one really gives a shiat about, then yes, she cray cray.

    BronyMedic: Lesson 1 on how to survive cancer:

    Don't waste your money on things like stem cell quackery.


    Out of curiosity, why? It seems like every 6 months or so I'm hearing about some new breakthrough in stem cell therapy, growing organs, stuff like that. Is it because the science hasn't matured to the point of human consumption?
  • spentmiles: Steve Jobs had the net worth of entire industrialized nations. You aren't going to make it.


    That should be on a demotivational poster. It's the truth, but damn that's harsh. :)
  • cleveralthere: I stopped at the part about the goodbye letter to the breasts. Thats enough o' the crazy right there


    Oh, no. SHE'S not the crazy one in this tale. She hadn't even arrived in Crazytown yet.
  • Comic Book Guy: Out of curiosity, why? It seems like every 6 months or so I'm hearing about some new breakthrough in stem cell therapy, growing organs, stuff like that. Is it because the science hasn't matured to the point of human consumption?


    Partly, yes. The other problem is that whenever any new medical technology comes out, so do the quacks, and for a while it can be almost impossible to tell the good from the bad.
  • The lives of the wicked should be made brief.
    For the rest of us death will be a relief.
  • Steve Jobs also avoided traditional therapy for alternative therapy for a number of months. Given his specific diagnosis, he'd likely still be alive if he stuck with the traditional stuff.
  • Comic Book Guy: cleveralthere: I stopped at the part about the goodbye letter to the breasts. Thats enough o' the crazy right there

    I'm willing to give her pretty wide latitude if she's getting a major, physically definable body part cut out. If she's doing that to her appendix or tonsils, something that no one really gives a shiat about, then yes, she cray cray.

    BronyMedic: Lesson 1 on how to survive cancer:

    Don't waste your money on things like stem cell quackery.

    Out of curiosity, why? It seems like every 6 months or so I'm hearing about some new breakthrough in stem cell therapy, growing organs, stuff like that. Is it because the science hasn't matured to the point of human consumption?


    'The first 90% of an endeavor takes the first 90% of the time. The other 10% takes the other 90%.'

    In medicine's case, there's animal trials, patent processing, etc. befote you even START human testing, final FDA approval, etc.

    It can be several years between having something in a lab and seeing it in hospitals, and that's even if it actually works outside the lab, and works how the researchers think it does and not an artifact of the lab equipment.
  • cleveralthere:
    I stopped at the part about the goodbye letter to the breasts. Thats enough o' the crazy right there

    Have a doctor tell you your nuts need to removed and then get back to us about "crazy" cancer patients and their coping strategies.
  • No Such Agency: cleveralthere:
    I stopped at the part about the goodbye letter to the breasts. Thats enough o' the crazy right there

    Have a doctor tell you your nuts need to removed and then get back to us about "crazy" cancer patients and their coping strategies.


    No doubt.
  • Munchausen by Internet. Or "how blogging introduced one cancer patient to the internet's swirling den of crazy" LiveJournal.
  • That was a lot of words to say "there are a lot of crazy, lying people on the internet."
  • This schmucky feeling is a byproduct of the internet.

    As a pre-internet schmuck, I'm getting a kick...
  • Celain:
    Steve Jobs also avoided traditional therapy for alternative therapy for a number of months. Given his specific diagnosis, he'd likely still be alive if he stuck with the traditional stuff.

    Likely.
    .. it WAS pancreatic cancer, the disease where surgery to remove half your abdominal organs is the GOOD option :/ 

    Seriously, f*ck cancer. I know it's a near-inevitable result of animals evolving multicellularity, but f*ck it :(
  • Comic Book Guy: Out of curiosity, why? It seems like every 6 months or so I'm hearing about some new breakthrough in stem cell therapy, growing organs, stuff like that. Is it because the science hasn't matured to the point of human consumption?


    There are certain things Stem Cells have matured for and are in active use for treatment by legitimate institutions.

    There are other things which they are in an experimental phase for. The key thing here is that those research programs won't ask you to spend thousands of dollars to recieve treatment if you are selected for them.

    Then, you have the quacks who sell stem cells as a cure for every kind of cancer imaginable.

    These are people who bilk thousands out of despirate and gullable cancer patients, and who often encourage them to go overseas because what they do is illegal in the United States thanks to laws on human experimentation and anti-quackery laws. They will then implant, or inject, material they claim to be stem cells into these patients.

    Actual "Stem cells" can cause other cancers if improperly used like this. In fact, it's one of the big risks of actually using stem cells.

    Many times, however, you're not getting pluripotent or undifferentiated stem cells. You're getting either animal biological material, or inert placebos.
  • "I have always found a modicum of snuff to be most efficacious..."

    bananaoilmovies.files.wordpress.comView Full Size
  • cleveralthere: I stopped at the part about the goodbye letter to the breasts. Thats enough o' the crazy right there


    That's not crazy; that's just a coping mechanism for a sucky situation. Lots of people do that sort of thing. You stopped reading well before getting to the real crazy.
  • Most of my friends who've been seriously ill have confined their internet activity to venues where access can be controlled. The problem a lot of naive internet users have is that they want their stories to be open to the public.

    I think the big mistake this woman made was to get so emotionally invested in someone that she gave her contact information. It's always a good idea to keep a distance from strangers on the internet until you've exchanged a lot of information with them. There is a point where the storyline breaks down (or not), given by the examples in the article.
  • I don't know if anyone who has been on the internet and involved with online communities would really find this surprising at all. I don't know if I've ever read a reasonably large thread on any active board that didn't have at least one poster who was lying.
  • cleveralthere: I stopped at the part about the goodbye letter to the breasts. Thats enough o' the crazy right there


    You shouldn't have stopped there. You should, however, hope that saying goodbye to parts of your body that are going to be sliced off in an effort to save your life always remains a wacky, incomprehensible idea to you.
  • As someone, much like many farkers, who has been on the internet pretty much my whole life, I can't say I'm shocked by any of this.

    It is definitely sad and thoroughly depressing, but from reading this I was made angrier that it's being pushed as a diagnosable disorder. I know that's probably shallow, I'm sure there's some people out there with a sickness... but actually giving them a quantifiable illness is, just seems bizarre. If you claim to have Munchhausen by Internet.... does that mean you have it, or that you don't have it?

    One possible bright side is this:

    There is probably nothing as thrilling, fantastical, or bizarre as an online support group for Munchhausen by Internet - just imagine the sheer oneupsmanship that would entail. "Yeah, I'm dealing with this disease which is basically me just being a douche, and I'm doing it... AFTER NINJAS KILLED MY FAMILY!"

    Maybe I'm alone in thinking how impossibly funny and simultaneously sad that mental image is...

    For a CSB moment, a friend of mine was diagnosed with cancer and I was brought into the loop early. I was, at the time, able to drop everything and basically help him out. Ironically it was right around the time 50/50 came out, though his initial prognosis was far less than that... there's very little heroic drama in helping someone navigate almost infinite levels of health insurance bureaucracy, and just trying to find the right group of physicians to treat an illness. There were definitely some funny or touching moments while I was down there, but my friend is a writer and playwright - if he wants to use that, he's more than welcome to, I have no such interest.

    I guess the point is this, the reason people care about Munchhausen by Proxy is that it puts someone ELSE at risk, usually children. And while the article may be cavalier about saying that 1 in 5000 is low - and seriously, someone needs to discuss rates of say... any other crime with them to understand how insanely high 1 in 5000 is - that's a lot of children at risk. Where as if someone is doing all of this to themselves, well... f**k em.

    As others have pointed on, on just these comments, there's no shortage of trolls and douchebags on the internet ready to use anonymity for their own gains. But this is no different than general grafting... I hate to put the onus on people running around the internet as a support group to help them... but I'd also be incredulous about alcoholics going to bars for advice. The internet is a shiatty place to get good or normal advice - the signal to noise ratio is just outlandish - and if you're in a vulnerable state to begin with... well, I can understand why she stopped blogging in the end entirely.

    The internet - fantastic place for reference, news, and countless other things... but emotional support? Walls typically have more empathy, and they don't spew random racial epithets if you tell them something.


    /Just a perspective...
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